Aims and Goals
The Foundation is run on a strictly not-for-profit basis, with all monies raised going directly to fund the aims and goals detailed below. It must be made clear that none of this would be possible without the support of the Private Sector through sponsorship, and the companies who have been charitable enough to support the fight against NMO, through advertising on our web site and associated publications.
In order to guarantee the continued success of our campaign, please, offer your support back to those companies wherever possible. NMO-UK The Rare Illness Research Foundation acts exclusively in all matters concerning fund raising and no profit-making companies or outside agencies will be used in this regard.
Aims and Goals
- To use all funds in accordance with the wishes of the Trustees and Medical Committee in respect of:
- Raising awareness of NMO and its symptoms, throughout the UK.
- Providing financial support for events and functions dedicated to raising funds and/or awareness of NMO, exclusively.
- Supporting the advancement of studies in Neurological Sciences at The Walton Centre, The John Radcliffe Centre, and The University Hospital of Wales – Cardiff.
- Funding the purchase of medical equipment.
- Assisting to provide qualified legal advice with regard to employment issues.
- Providing direct financial support through our grant procedure for the adaptation of residential property.
- Providing a full and comprehensive service offering help and support for NMO sufferers, their family members and carers across the UK.
- No tears for Tia - she’s fighting back!
- Occasionally we come across a story that tugs at the heart strings, stirs the emotions, and the grips us through the despair, the hope and the longing for a happy ending.
- Our lead article for the first edition of the magazine does all of this. We join Tia-Grace and her mother Sandy’s emotional rollercoaster, full of fear, confusion, despair and an unyielding hope for a happy ending where the smiles defeat the pain.