My name is Trish, I am a mother of a beautiful daughter who suffers this terrible illness, it has long been my dream to be involved in a charity to support the sufferers of NMO, little did I know that I would be involved as its founder. It’s been a long road to get here since its conception but I don’t treat this as the end, rather the beginning, the beginning of the real reason we are here, to find the cure and to ensure that no one suffers alone.
Hi! I’m a retired Secondary School teacher who was diagnosed with an NMO Spectrum disorder in 2010, though I had suffered unexplained symptoms for the preceding 10 years or more. Early in 2017 my diagnosis was changed to Primary Progressive MS, as my indicators had changed. My symptoms remain the same.
I feel very privileged to have been invited to become a Trustee of NMO Spectrum-UK.
Tony usually refers to me as ‘Mr Blues’ because of my interest in writing, recording, and performing Blues Music.
Please take a look at my web site: www.iwokeupthismorning.co.uk.
Hi, I’m Parveen Panesar and was diagnosed with MMO Devic’s disease in 2004 after suffering a severe relapse which left me paralysed from the neck down. Prior to this since 2001 I had optic neuritis and areas of numbness in my limbs with spasms and tingling. I was fortunate enough to recover from the major relapse which has unfortunately left me unable to see through my right eye, unable to walk without an aid and a wheelchair user. Despite all that comes with this illness I try to remain positive. It is an honour for me to be part of this charity as a trustee and I will endeavour to support enthusiastically and tirelessly in order that one day there will be a cure, having experienced first hand how this debilitating illness can change one’s life over night.
As the wife of John, a sufferer of NMO, I am fully aware of the devastating effects of this condition. I was very pleased to be invited to take up the role of Trustee and I am looking forward to doing everything I can to support this charity.
Gail McCallum has joined our team as a trustee and Information Officer working within our Press and PR department. Gail has a long and successful career in PR and Marketing within the railway industry and later worked several years with an advertising agency.
Robert initially worked as a journalist prior to a lengthy career in public relations. Robert heads up our public relations department and works closely with Neuro Consultants across the UK to raise awareness of the symptoms and diagnosis criteria of NMO-Spectrum Disorders as a volunteer with our charity.
- No tears for Tia - she’s fighting back!
- Occasionally we come across a story that tugs at the heart strings, stirs the emotions, and the grips us through the despair, the hope and the longing for a happy ending.
- Our lead article for the first edition of the magazine does all of this. We join Tia-Grace and her mother Sandy’s emotional rollercoaster, full of fear, confusion, despair and an unyielding hope for a happy ending where the smiles defeat the pain.